Bestfoot4wardblog highlights the ups and downs, the horizontals, the inside outs and the upside downs of living with CMT or Charcot-Marie-Tooth Disease. CMT is an inherited and progressive nerve disease, but neither my husband nor I have it. Yohan, now 27-years-old, was diagnosed with CMT1A when he was 7. His CMT is caused by a spontaneous genetic mutation. Like some famous person once said, “Shit Happens!”
I started this blog as a way of sharing the very real experiences of living with CMT, including CMT foot reconstruction surgery, perceived differences, teaching kids about CMT, CMT awareness….you get it – all things CMT! Along the way, I also wanted to portray the stories of my friends, who live alongside this insidious disease, without letting it swallow them up whole. I call them, “The Much Admired.” I’ve also added some additional stories revealing many of my own issues, including living and dealing with chronic foot pain for a quarter of a century, which adds up to half of my life. Craziness!
When I am not writing about CMT, I volunteer my time to the Charcot-Marie-Tooth Association (www.cmtausa.org) and its members. The CMT community is inspirational, strong, courageous, committed and generous. I feel fortunate to have the opportunity to work with a group of such amazing people.
And when I’m not volunteering at the CMTA, I’m with my horse, Cantaro, my hairless cats, Luna and Tsuki, playing with my friends’ dogs or any other animal who enjoys love, attention and playtime! Training animals has always been a passion and I believe that with patience and the right tools (clicker and treats), animals can learn to do just about anything. They are truly superior being in so many ways!
Come join me and read my blog…read about the lighter side of having CMT and chronic pain. Another famous person once said, “If you don’t laugh, you’ll just end up crying.” Personally, I prefer heartfelt laughter because it feels good and besides, my Zoloft dried up all my tears. Enjoy!
Elizabeth M. Ouellette