Recovery 101-Put Your “Breast” Foot Forward!

Yohan’s Foot Surgery #15: Put your “Breast” Foot Forward!   What else could possibly go wrong? After the pressure sore on the bottom of Yohan’s foot had more or less healed, his big left toe got infected. At this point, he was finally in a plastic brace instead of a big, bulky walking boot. At […]

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Foot Surgery Can Cause Insanity

Yohan’s Surgery #14: Caution: Foot Surgery Can Cause Insanity September 12, 2016   I just took the sanity test on the internet and despite what you might think, I am NOT crazy. According to the quiz, I am sane, which is a huge relief because now I don’t have to take bust and waist measurements […]

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Hans, the Finger and the Dyke

Yohan’s Surgery #13: Hans, the Finger and the Dike August 21, 2016   Since Yohan had his cast removed last Thursday, I feel like that Dutch kid, Hans, whose dike-plugging skills prevented a disastrous flood from annihilating his village. Here’s why: Dr. Pfeffer told us at least 99 times that when the cast comes off […]

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My Spiel about Peel

Yohan’s Surgery #12: My Spiel about Peel August 16, 2016 False alarm! We thought the cast was coming off, and it did, for about 30 minutes, before they slapped another one right back on his foot. And what’s with adult orthopedics? The available colors are so exceedingly boring! They did offer pink, orange, black, dark […]

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How to Make Life “Fun” in a Cast

Yohan’s Surgery #11: How to Make Life “Fun” in a Cast August 3, 2016   So many things can go so wrong when you are in a cast. I’m about to tell you true stories. I wish they were not true, but they are. Here is a glimpse of my everyday chaotic life, which is […]

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Don’t Just Sit There, Do Something

The Power of One – Don’t Just Sit There, Do Something! July 26, 2016 Chris OuelletteThis is my brother, Chris.He’s the organizer, the motivator, the visionary behind the Vermont Cycle 4 CMT event, which is now in its 3rd year. He’s a wonderful uncle, a cherished sibling and one of the kindest and most thoughtful […]

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If You Can’t Beat ‘Em, Join ‘Em

Yohan’s Surgery #10: If You Can’t Beat ‘Em, Join ‘Em July 18, 2016   Due in part to the effects of his CMT, Yohan has never been particularly athletic. When he was young, he enjoyed swimming lessons, played tennis and racquetball, kayaked and camped with his dad. He even learned to ride a horse. As […]

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The Journey Ahead

Yohan’s Surgery #9: The Journey Ahead July 7, 2016 Thanks to 9 different procedures, over 100 stitches and 7 long hours of surgery, Yohan has a new foot underneath that cast. A foot that is straighter, more functional and completely reconstructed. And the journey has just begun. In August, he can put weight on the […]

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The Joys of Life after CMT Foot Surgery: When You Gotta Go, You Gotta Go!

Yohan’s Surgery #8: The Joys of Life after CMT Foot Surgery: When You Gotta Go, You Gotta Go! July 5, 2016   I love shopping.  How exciting to get ready for a new event or occasion! Imagining what’s needed for the upcoming affair is just half the fun. The other half is actually buying everything […]

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The CMT Inaccessible Home

Yohan’s Surgery #7: The CMT Inaccessible Home July 1, 2016   I hate to say it, but Yohan was right. Our house is unequivocally inaccessible. Sad thing is, I was totally and completely oblivious. Since we have no inside stairs and there are only a couple of steps leading into the house, I never thought […]

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Honest Pee

Yohan’s Surgery #6: Honest Pee June 26, 2016   Walking around with CMT can be hard enough, but when you have one foot, weighted down by a cast, off the ground entirely, and the other foot, affected by CMT (pain, high arches, weak ankles, limited or no ability to lift the foot when taking a […]

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The Hospital Stay

Yohan’s Surgery #5: The Hospital Stay June 25, 2016   I’ve been an active volunteer for the CMTA for the past 13 years. I’ve organized CMT conferences, written articles, acted as an administrator on several Facebook groups, created a presentation to teach kids about CMT, answered Ask the Expert questions, facilitated a CMTA Branch, etc, […]

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