Month: March 2017

Here We Go Again – Déjà Vu?

March 28, 2017.Reading time 6 minutes.

Second Surgery, Same Foot I started writing this post last night, as a way of  getting my feelings out and on “paper.” But, the more I wrote, the worse  I felt. I shut down my computer and used my “call a friend” coupon. When feeling blah, I usually hide in a shell, stick my head […]

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CMTA: Turning Science Into Therapies

March 26, 2017.Reading time 11 minutes.

On Saturday, March 18, the CMTA put on a Patient/ Family Conference in collaboration with the University of Miami. We had a wonderful turnout, with people from all over the world in attendance. Gilles Bouchard, the CMTA’s Board Chair, explained progress to date on CMTA-funded research. I wanted to share my notes with You!   […]

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The Inside Scoop: The Real Story Behind Bethany’s Book, “How Should a Body Be”?

March 11, 2017.Reading time 5 minutes.

One day about 7-8  years ago, I get this random call from a young woman from Michigan. She wanted to volunteer with the CMTA. “Sure!”, I said enthusiastically. “We are always looking for volunteers-ALWAYS!”  Now, compared to my loud, overly animated voice and my quick speaking conversational style, my new friend, Bethany, spoke slowly, methodically and […]

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