CMT BOOT CAMP

CMT BOOTCAMP 2017 It’s a rigorous agenda; and certainly not for the faint of heart.  Some end up here willingly, and others just happen to land here unknowingly, without a means to escape.  Yohan, a victim of the latter scenario, is counting down the days of this grueling summer when he flies free into the […]

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Surgery, Smurgery: What Are We Going To Do About That Facial Hair?

Same foot.  Same surgeon. Similar surgery. Different results!!!!!! The recovery experience, so far, has been nothing, and I mean nothing like the first surgery in June of 2016, which is the best news ever. And this is how I’m feeling about that: We took preemptive measures: The anesthesiologist beefed up the nerve block so it […]

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Grateful For Cadavers – They Change Lives

UPDATE! Yohan had his second  7-hour surgery ( a redo of his left foot) on Wednesday, March 29 at Cedars-Sinai, in LA with Dr. Glenn Pfeffer. As you may have guessed, his first surgery was not successful. We will probably never really know why, but apparently, some of Yohan’s muscles in his lower leg were […]

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Here We Go Again – Déjà Vu?

Second Surgery, Same Foot I started writing this post last night, as a way of  getting my feelings out and on “paper.” But, the more I wrote, the worse  I felt. I shut down my computer and used my “call a friend” coupon. When feeling blah, I usually hide in a shell, stick my head […]

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“FEEL” is a 4-Letter Word

Yohan’s Foot Surgery #19     I hear voices. Eavesdropping, as if I were an innocent bystander, I witness the back and forth volley of words, arguments, and reasoning. Often, I put a harsh stop to the banter, for fear of losing too many precious minutes to internal disputes and emotionally draining debates. Trying to […]

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Good Friends Are Hard to Find: Yohan’s Foot Surgery – #18

Good Friends are Hard to Find: CMT feet, Cheetah legs & Time travel It was in the fall of 9th grade, and Yohan had just twisted his ankle, yet again. It was a bad sprain, nothing a couple weeks of icing and crutches wouldn’t cure. But, a bum ankle was just the tip of the […]

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