Guilt Giving: Let Me Count The Ways

I walked into the ice cream store, craving a scoop of malted milk ball deliciousness – in a waffle cone, of course. As the only bona fide paying customer in the shop, I expected quick and efficient service, but the middle-aged man freaking out about his lost credit card was getting all the attention. The […]

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How Do You Spell Progress in CMT Research? STAR!

On the 10th Year Anniversary of the launch of STAR (Strategy to Accelerate Research), CMTA Chairman, Gilles Bouchard, gives a webinar explaining the current status and remarkable advances made in CMT research. This webinar was so informative and well-done, I transcribed it for you. Spread the word folks. Pretty amazing work being done right now. […]

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Public Loo Etiquette: Based on True Stories

  Have you ever wondered why public bathrooms are called restrooms? There is no rest to be had in any public restroom, just stress, fear, and anxiety. Listen, if I want to rest, I’ll just stay home and lie on the couch or go to bed.  Why in the world would anyone want to rest […]

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Raising Kids With CMT-Where In The Heck Is the Manual?

Last week, I purchased a top-of-the-line 4K LED Smart TV with enough options to bedazzle even the most technologically gifted.  Some of the features were intuitive enough that I proudly disregarded the instruction manual altogether.  To my dismay, I soon discovered that a good number of even the simplest functions were complicated, puzzling and downright […]

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Seeking Alternatives to Narcotics: Cannabis

We are in the midst of an opioid overdose epidemic. As the laws on prescribing narcotics become stricter, the millions of people who suffer from chronic and debilitating pain are left to fend for themselves. Denied access to pain-relieving medication, those with excruciating conditions are suffering, searching for alternative forms of relief. It is in this […]

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Discovered: Modern Day Superman

SUPERHEROES I’ve seen the name, Quentin Martin, like everywhere on the CMTA social media pages lately. And coincidentally, just last week,  he reached out to me about promoting igive.com for the CMTA.  But, before getting into all that, let me tell you a bit about our friend, Quentin. A Little Background As a youngster, he […]

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How Much Do You Know About CMT?

Top Twelve Reasons I’m Talking About CMT during Awareness Month   – When I tell people my son has Charcot-Marie-Tooth disease, I get looks like this: Let’s stop the nonsense. I’m looking for reactions of recognition, like Dr. House’s below: 9) Dentures? Besides having had too many cavities, crowns, and pulled teeth, there is absolutely […]

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