Embracing Differences: Everyone Has Something!

Yohan was diagnosed with CMT 1A at the age of 7. Neither my husband nor I have CMT, so Yohan’s CMT is the result of a de Novo mutation- the first person with CMT ever in our families. CMT just showed up one day on our doorstep as would a long forgotten relative, needing a […]

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CMT BOOT CAMP

CMT BOOTCAMP 2017 It’s a rigorous agenda; and certainly not for the faint of heart.  Some end up here willingly, and others just happen to land here unknowingly, without a means to escape.  Yohan, a victim of the latter scenario, is counting down the days of this grueling summer when he flies free into the […]

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