Yohan’s Surgery #9: The Journey Ahead

Thanks to 9 different procedures, over 100 stitches and 7 long hours of surgery, Yohan has a new foot underneath that cast. A foot that is straighter, more functional and completely reconstructed.

And the journey has just begun. In August, he can put weight on the foot. And then there will be months of rehabilitation before the right foot undergoes the same exact procedures.

The last 2 weeks have been fraught with raging pain, immobility, fear, fleeting regrets, despair, and hope. Had we made the right decision? Will this foot with screws, pins, wires and severed tendons actually restore his ability to walk, stand and possibly run? That question will be answered in the weeks and months to come.

Still, he holds a smile on his face and his humor remains intact. Do I wish I could take all the pain away? Yes, absolutely. But that is not reality.

Yet, there is something we can do. We can all support the STAR research initiative that holds promise to stop the progression of CMT. We can participate in the Cycle 4 CMT event, fundraise and get involved. Let’s stop CMT in its tracks and give hope to hundreds of thousands of people across the globe.