The Journey Ahead

Yohan’s Surgery #9: The Journey Ahead July 7, 2016 Thanks to 9 different procedures, over 100 stitches and 7 long hours of surgery, Yohan has a new foot underneath that cast. A foot that is straighter, more functional and completely reconstructed. And the journey has just begun. In August, he can put weight on the […]

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The Joys of Life after CMT Foot Surgery: When You Gotta Go, You Gotta Go!

Yohan’s Surgery #8: The Joys of Life after CMT Foot Surgery: When You Gotta Go, You Gotta Go! July 5, 2016   I love shopping.  How exciting to get ready for a new event or occasion! Imagining what’s needed for the upcoming affair is just half the fun. The other half is actually buying everything […]

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The CMT Inaccessible Home

Yohan’s Surgery #7: The CMT Inaccessible Home July 1, 2016   I hate to say it, but Yohan was right. Our house is unequivocally inaccessible. Sad thing is, I was totally and completely oblivious. Since we have no inside stairs and there are only a couple of steps leading into the house, I never thought […]

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Honest Pee

Yohan’s Surgery #6: Honest Pee June 26, 2016   Walking around with CMT can be hard enough, but when you have one foot, weighted down by a cast, off the ground entirely, and the other foot, affected by CMT (pain, high arches, weak ankles, limited or no ability to lift the foot when taking a […]

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The Hospital Stay

Yohan’s Surgery #5: The Hospital Stay June 25, 2016   I’ve been an active volunteer for the CMTA for the past 13 years. I’ve organized CMT conferences, written articles, acted as an administrator on several Facebook groups, created a presentation to teach kids about CMT, answered Ask the Expert questions, facilitated a CMTA Branch, etc, […]

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Before the Knife—the Anesthetic

Yohan’s Surgery #4 – Before the Knife—the Anesthetic June 22, 2016   Everything is fun and games until the anesthesia wears off. The most polite Yohan I’ve ever witnessed was in the recovery room immediately following surgery. He was still under the influence of a light sedative and thanks to the nerve block that numbed […]

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And 7 Hours Later

Yohan’s Surgery #3-And 7 Hours Later….. June 21, 2016   After four hours, we started to wonder, “What is taking so long?” He was wheeled away at 7:30 a.m. and should have been done by noon, at the very latest.  A female voice called our cell phone on behalf of the surgery team several times […]

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