Top Ten Reasons I’m Talking About CMT in September
10. When I tell people my son has Charcot-Marie-Tooth disease, I get looks like this:
Let’s stop the nonsense. I’m looking for reactions of recognition!
9) Besides having cavities and crowns, there is absolutely nothing wrong with my teeth or Yohan’s (Thanks Dr. Tooth) Dr. Howard Henry Tooth discovered this progressive neuromuscular disease with Drs Charcot and Marie and just had to have his last name attached to the end of our disease: Charcot-Marie-Tooth.
8. Jean-Marie Charcot is known as the father of modern neurology. He is the greatest man of all time. And, we will never forget him because his name got stuck on a whole bunch of different diseases. It only creates confusion!
Will the real Charcot, please stand up, please stand up!
Here is the short list:
- Charcot’s artery (lenticulostriate artery)
- Charcot’s joint (diabetic arthropathy)
- Charcot’s disease (amyotrophic lateral sclerosis, the most-common subtype of motor neurone disease — also known as Lou Gehrig’s disease.)
- Charcot–Marie–Tooth disease (peroneal muscular atrophy), named with Pierre Marie and Howard Henry Tooth.
- Charcot–Wilbrand syndrome (visual agnosia and loss of ability to revisualise images), named with Hermann Wilbrand.
- Charcot’s intermittent hepatic fever (intermittent pain, intermittent fever, intermittent jaundice, and loss of weight)
- Charcot–Bouchard aneurysms (tiny aneurysms of the penetrating branches of middle cerebral artery in hypertensives), named with Charles-Joseph Bouchard.
- Charcot’s triad of acute cholangitis (right upper quadrant pain, jaundice, and fever)
- Charcot’s triad of multiple sclerosis (nystagmus, intention tremor, and dysarthria)
- Charcot–Leyden crystals due to the lysis of eosinophils in cases of allergic diseases, named with Ernst Viktor von Leyden.
- Souques–Charcot geroderma: a variant of Hutchinson–Gilford disease, named with Alexandre-Achille Souques.
- Charcot–Gombault necrosis: a biliary infarct, named with Albert Gombault.
7. Let everyone know that CMT does not stand for:
Country Music Television
Childen’s Musical Theater
Certified Massage Therapist
6. Give others ways to remember the name, pronounce like:
Just an FYI: you do not have to have a collection of shark teeth to be part of the Charcot-Marie-Tooth Association 🙂
5. And, if you feel awkward about starting the CMT discussion, you and your animals can dress up like a shark – it’s fun and you can easily get the point across! Or, just paint your horse with non-toxic paint. People will ask…..trust me.
4. Tell people you wear braces and when they look at your mouth, flash them with your legs and show off your AFO’s (braces)!
3. Wow your friends with your knowledge of medical jargon. Use CMT-related words like:
peripheral neuropathy, autosomal dominant, hereditary motor and sensory neuropathy, dorsiflexion, plantar flexion, pes cavus, myelin, axons, exome sequencing, orthosis, etc…… They’ll be stunned by your brilliance.
2. The CMTA makes it fun to celebrate and talk about CMT during CMT awareness month We have an entire interactive site dedicated to CMT awareness: https://www.cmtausa.org/one-voice-awareness-month-2017/
On the Awareness Month site, you can read CMT about and download this super informative document with friends and family:
You can also learn how to install the CMT Twibbon on your Facebook profile picture:
Give your friends and family the CMT Quiz!
Here is an example of the first couple of questions:
1. If you suspect you have Charcot-Marie-Tooth disease, who would you go see?
Share Your Story, and much, much more! Be sure to check it out!
- CMT Awareness Month finally gives you the opportunity to promote CMT awareness, acceptance and knowledge. I truly believe that education is power. Let others know about the fatigue, the clumsiness, the high-arched feet, the braces and everything else that comes with CMT. Be factual. Own it and don’t let it own you. If you accept your CMT, others will too. Now go forth and talk, write, post about CMT. You just might get a sense of relief!