The Hospital Stay

Yohan’s Surgery #5: The Hospital Stay June 25, 2016   I’ve been an active volunteer for the CMTA for the past 13 years. I’ve organized CMT conferences, written articles, acted as an administrator on several Facebook groups, created a presentation to teach kids about CMT, answered Ask the Expert questions, facilitated a CMTA Branch, etc, […]

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Before the Knife—the Anesthetic

Yohan’s Surgery #4 – Before the Knife—the Anesthetic June 22, 2016   Everything is fun and games until the anesthesia wears off. The most polite Yohan I’ve ever witnessed was in the recovery room immediately following surgery. He was still under the influence of a light sedative and thanks to the nerve block that numbed […]

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And 7 Hours Later

Yohan’s Surgery #3-And 7 Hours Later….. June 21, 2016   After four hours, we started to wonder, “What is taking so long?” He was wheeled away at 7:30 a.m. and should have been done by noon, at the very latest.  A female voice called our cell phone on behalf of the surgery team several times […]

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The Wait

Yohan’s Surgery #2 – The Wait June 20, 2016   The worst part is the wait. Waiting for the weeks, the days, the hours, leading up to the surgery. Now there are only minutes before they bring him into  the OR for this life-altering procedure.  Dr.Pfeffer arrives smiling, wearing scrubs and a sports coat, an […]

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Surgery is Imminent

Yohan’s Surgery #1 – Surgery is Imminent June 20, 2016   His toes are curled, especially the pinky toe which begs attention by standing just that much higher to make wearing any shoe a challenge. His crescent arches make walking a balancing act. His calves are as tight as the string of a bow and […]

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